Thursday, May 1, 2008

And then there was the CI debate...

Hey All,

I am note sure if I mentioned this is yesterdays post or not but I told my audiologist that I would go meet with the cochlear implant audiologist. I do not want a CI. I am sticking with that, but there isn't a harm in looking into it is there? I have read a whole bunch of stuff from Cochlear Americas, Advanced Bionics, and Med-el. I have watched all of their videos, and read all the stories from recipiants of their implants. All of them have the same story, 'My life was over and ruined by my deafness. Now I can hear and I am forever greatful. My life will once again have meaning and purpose." I have watched videos and read stories about people who hated their implants. I have looked into the medical complications, and the risks involved. I have spoken to people face to face about their implants. I have talked with people who love their implant and use it every waking hour, people who only use it when around hearing people, and people who used it for a few months and haven't touched it since. I think I have given myself a glimps of CI's from every side of the argument. I still stand firm, I don't want to do it.

Yesterday, for the first time, my audiologist told me she wanted me to go and look into it. She had never said she wanted me to go before. When I asked what she wanted me to do, or how she felt about it, she would always say it didn't matter to her. It was completely up to me and if I wanted to do it then she would arrange the appointment for me in a heartbeat. Yesterday, she actually said she wanted me to go. Knowing that she wants me to go, I told her yesterday that I would. I think my main motivation behind agreeing is making those around me happy. All of my hearing friends want me to get a CI. None of them can really understand why I wouldn't want it.

My circumstances are a bit different from most peoples. Yes I have a progressive loss, and yes I participated in the mainstreamed hearing world my whole life, but I have also been signing my whole life, and I have had Deaf friends my whole life. I truly feel as though I am stuck between two worlds right now. I think that going and meeting with a CI audiologist will give my hearing friends, parents, and my audioloigst some peace of mind knowing that I really did explore all of my options and I am making an informed decision. I do understand where my audiologist is coming from, wanting me to go, she just wants to ensure that I am making an informed choice and that she have given me every opportunity to do so. I get that.

I guess the previous paragraphs were me convincing myself that I actually wanted to go to this CI meeting. It was unsuccesful. I will do it anyway though.

In other news, my audiologist ordered me a new Naida for my right ear. I think it is a problem with the battery contacts. I have noticed that it mostly dies when I tuck my hair behind my ear, or adjust my glasses. I think that the little jostle it gives the hearing aid is causing the battery to lose contact with the...um...contacts. I should have the new aid next week. Hopefully this is it too. I need this all to be solved by summer when I start working full time. That leaves two months as of today. I know that seems like plenty of time, but me of all people, knows what can change in two months. A lot can change in two months. At least my thresholds have stabalized. My sensorineural ones anyway. My conductive thresholds are always going to fluctuate. My sensorineural thresholds are about 10-15dB better than my conductive ones. For my that 10-15dB is huge! I also don't want to be loosing more of my hearing to a conductive loss. My audiologist wants me to talk to an ENT about preventing it further. I am going to talk to my family doctor about it on Monday. See what she has to say about it. I know that for various reasons I wasn't a candidate for tubes when I was younger. Maybe that has changed now. We shall see.

Anyway, I have school soon so I should be heading out.

-Jenny

3 comments:

Valerie said...

It took me 5 years to make my decision. It is not a choice you take lightly. don't do it for anyone but yourself.

Valerie

Cyborg Queen said...

I agree with Val. I basically got mine because my hearing loss has progressively gotten worse. Everything sounded so distorted, especially music. I found myself asking people "What? What?", and I had a pretty powerful hearing aid. Although probably not as powerful as Navida.

I orginally thought I would not qualify for CI because I had too much residual hearing. I waited 4 or 5 years, then got implanted. I could not be any more wrong. The more residual hearing you have, the better it actually may be.

It is absolutely your decision. You seem to do pretty well with your hearing aids and it suits you just fine. What would you do if you have a complete loss? Would you consider getting a CI then? Or will you just deal with it down the road? I know if I tried to live in a silent world, I would absolute hate it.

You can tell those people that are "pressuring" you to get a CI to back off, you don't pressure them, so why should they pressure you?

I wish you best of luck!

JennyB said...

If I were to have a complete loss I would deal with it when it happens. Without my hearing aids my world is silent. Even with them I can't understand speech. I speech read 100% of the time. I can do very well without my aids too. I also sign. I will be using interpreters in University next year and I have adapted quite well. A CI is a very big decision that I am not ready to even consider making right now. Maybe...MAYBE if down the road things change then yes, I would look into it more and see if I qualify.